Continuing Health Care (CHC) Click to get info
Continuing Care is a way of funding health care packages for babies, children and young people (from birth to 18 years old) with complex healthcare needs whose needs cannot be met by existing mainstream or specialist health services. These complex needs may be as a result of disability, accident or illness.
Children and Young People are assessed using the National Framework for Children and Young People’s Continuing Care (DOH 2016). This framework is designed to support Clinical Commissioning Groups (CCGs) in determining if a child’s needs are such that they can only be met through a package of continuing care.
The framework also sets out an equitable, transparent and timely process for assessing, deciding and agreeing these bespoke packages of care.
Each care package will be commissioned to meet the individual needs of each child/young person and their family and can involve health education and social care.
If you feel that you, a family member or someone you care for may be eligible for NHS CHC, please speak to your community nurse or your GP about an assessment.
What is a personal health budget? Click to get info
A personal health budget (PHB) is an amount of money to support your identified health and wellbeing needs which is planned and agreed between you and your local NHS team. The aim of a personal health budget is to give people with long term conditions and disabilities greater choice and control over the healthcare and support they receive. Children and young people who are eligible for Children’s Continuing Care have the right to a personal health budget. The NHS is extending the scope of personal health budgets and more details about this will be made available in due course.
Transforming Care Click to get info
Following the shocking abuse seen at Winterbourne View, a hospital for people with learning disabilities and autism, in 2011, People with learning disabilities, family carers, health and social care organisations came together to form the Transforming Care programme.
The Transforming Care programme aims to improve the lives of children, young people and adults with a learning disability and/or autism who display behaviours that challenge, including those with a mental health condition.
The programme has three key aims:
- To improve quality of care for people with a learning disability and/or autism
- To improve quality of life for people with a learning disability and/or autism
- To enhance community ability and reducing the number of people going into hospital inappropriately and staying there too long.
“Building The Right Support” and “The National Service Model” were also published by NHS England and its partners in October 2015. The Service Model states that:
“Children, young people and adults with a learning disability and/or autism who display behaviour that challenges, including those with a mental health condition have the right to the same opportunities as anyone else to live satisfying and valued lives and, to be treated with the same dignity and respect. They should have a home within their community, be able to develop and maintain relationships and get the support they need to live a healthy, safe and fulfilling life.”
Care Education and Treatment Reviews (CETR) were introduced to help people in hospital, to prevent unnecessary admissions into hospital and where people do need to go into hospital to support there being clearly specified intended treatment outcomes and a discharge plan.
CETR’s are for children and adults with a learning disability, autism or both. CETRs were developed as part of NHS England’s commitment to improving the care of people with learning disabilities autism or both. The ‘Care and Treatment Review: Policy and Guidance’ was first published in October 2015. It has been refreshed and improved in March 2017 and improved following a period of gathering feedback from people who have been involved in delivering or receiving reviews.
At its heart, a Care Education and Treatment Review is based on the following important principles:
- Person centred and family centred
- Evidence based
- Rights led
- Seeing the whole person
- Open, independent and challenging
- Nothing about us without us
- Action focused
- Life in the Community
The reviews always ask:
- Is the person safe?
- Are they getting good care and treatment?
- What are their plans for the future?
- Can care and treatment happen in their own home and their own community?
Care Education and Treatment Reviews are different from other reviews of peoples care. They are about making sure services put children and adults at the centre of their care. They are independent from the person’s day to day care, and the review panel is made up of the commissioner and two independent expert advisors – both clinical and experts by experience.
Designated Medical Officer (DMO) and Designated Clinical Officer (DCO) Click to get info
The Designated Medical Officer (DMO) is a community paediatrician and Designated Clinical Officer (DCO) is an experienced paediatric therapist who both have a dedicated role in providing a link between the Local Authority and health services for children with Special Educational Needs and Disabilities.
The DMO/DCO have a key role is supporting Waltham Forest CCG to meet its statutory responsibilities for children and young people with special educational needs and disabilities and agreeing the relevant health services within an Education, Health and Care (EHC) plan.
The DMO/DCO oversees the processes for health information being shared with Education. They act as a point of contact for others involved in the care of children and young people with additional needs on matters related to health and education, for example, local authorities, schools, colleges, voluntary services.